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	<title>Symptom Advice .com &#187; amazement</title>
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		<title>&#039;I&#039;ve been to hell and back&#039;</title>
		<link>http://symptomadvice.com/ive-been-to-hell-and-back/</link>
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		<pubDate>Wed, 16 Feb 2011 01:51:24 +0000</pubDate>
		<dc:creator>Symptom Advice</dc:creator>
				<category><![CDATA[sclerosis symptoms]]></category>
		<category><![CDATA[amazement]]></category>
		<category><![CDATA[australia]]></category>
		<category><![CDATA[daughter grace]]></category>
		<category><![CDATA[high school science]]></category>

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		<description><![CDATA[TEARS roll &#100;&#111;&#119;&#110; Carmel Turner&#039;s face. She takes one step, and then another, and then another. She doesn&#8217;t stop &#102;&#111;&#114; half an hour. Her husband Scott and &#116;&#104;&#101;&#105;&#114; two-year-old daughter Grace watch &#105;&#110; amazement. She &#105;&#115; on &#116;&#104;&#101; treadmill &#105;&#110; a room &#111;&#102; &#116;&#104;&#101;&#105;&#114; Langwarrin home and it&#8217;s &#116;&#104;&#101; first time she &#104;&#097;&#115; walked &#105;&#110; [...]]]></description>
			<content:encoded><![CDATA[<p></p><p><img src="http://symptomadvice.com/wp-content/uploads/2011/02/1297821084-82.jpg" style="clear:both;clear:both;margin:0 15px 15px 0;width:500px" />
<p><strong> TEARS roll &#100;&#111;&#119;&#110; Carmel Turner&#039;s face. </strong></p>
<p>She takes one step, and then another, and then another. She doesn&#8217;t stop &#102;&#111;&#114; half an hour.</p>
<p>Her husband Scott and &#116;&#104;&#101;&#105;&#114; two-year-old daughter Grace watch &#105;&#110; amazement.</p>
<p>She &#105;&#115; on &#116;&#104;&#101; treadmill &#105;&#110; a room &#111;&#102; &#116;&#104;&#101;&#105;&#114; Langwarrin home and it&#8217;s &#116;&#104;&#101; first time she &#104;&#097;&#115; walked &#105;&#110; two years.</p>
<p>It&#8217;s a moment she thought &#119;&#111;&#117;&#108;&#100; never happen, after two years &#111;&#102; hell.</p>
<p>&quot;I &#106;&#117;&#115;&#116; &#107;&#101;&#112;&#116; putting one foot &#105;&#110; front &#111;&#102; another, it &#119;&#097;&#115; a miracle, it &#119;&#097;&#115; &#105;&#110;&#099;&#114;&#101;&#100;&#105;&#098;&#108;&#101;, it &#119;&#097;&#115; surreal,&quot; she says.</p>
<p>Days earlier she had &#098;&#101;&#101;&#110; one &#111;&#102; &#116;&#104;&#101; first people &#105;&#110; Australia &#116;&#111; have a bone marrow stem cell transplant &#102;&#111;&#114; her multiple sclerosis.</p>
<p>After giving birth &#116;&#111; Grace, &#108;&#105;&#107;&#101; &#109;&#111;&#115;&#116; first-time mums, Ms Turner thought it &#119;&#111;&#117;&#108;&#100; be &#116;&#104;&#101; &#115;&#116;&#097;&#114;&#116; &#111;&#102; a happy and fulfilling new chapter &#105;&#110; her life.</p>
<p>But &#119;&#104;&#101;&#110; Grace &#119;&#097;&#115; &#106;&#117;&#115;&#116; &#116;&#104;&#114;&#101;&#101; months old, Ms Turner &#115;&#116;&#097;&#114;&#116;&#101;&#100; suffering severe pain and had difficulty walking. &quot;It &#119;&#097;&#115; &#108;&#105;&#107;&#101; someone stabbing &#109;&#101; &#119;&#105;&#116;&#104; a knife &#105;&#110; &#109;&#121; brain, it &#119;&#097;&#115; excruciating,&quot; she says.</p>
<p>The energetic high school science teacher &#098;&#101;&#099;&#097;&#109;&#101; a shadow &#111;&#102; her former &#115;&#101;&#108;&#102;, sleeping &#109;&#111;&#115;&#116; &#111;&#102; &#116;&#104;&#101; time.</p>
<p>&quot;&#116;&#104;&#101; &#119;&#111;&#114;&#115;&#116; thing &#105;&#115; &#121;&#111;&#117; don&#8217;t &#107;&#110;&#111;&#119; &#104;&#111;&#119; much worse it&#8217;s &#103;&#111;&#105;&#110;&#103; &#116;&#111; get &#8230; I cried &#101;&#118;&#101;&#114;&#121; night and I didn&#8217;t &#107;&#110;&#111;&#119; what it &#119;&#097;&#115;,&quot; she says. &quot;I didn&#8217;t &#107;&#110;&#111;&#119; what &#116;&#111; do &#116;&#111; stop &#116;&#104;&#101; pain.&quot;</p>
<p>She &#119;&#111;&#117;&#108;&#100; rise &#097;&#116; 8am and be back &#105;&#110; bed &#097;&#116; 11am, &#110;&#111;&#116; rising again until 3pm.</p>
<p>She couldn&#8217;t handle heat and &#115;&#116;&#111;&#112;&#112;&#101;&#100; &#104;&#097;&#118;&#105;&#110;&#103; hot showers. She wore a cooling vest, packed &#119;&#105;&#116;&#104; ice, 24 hours a day. No doctor could diagnose her mystery illness, and one even told her it &#119;&#097;&#115; post-natal depression and &#116;&#111; snap out &#111;&#102; it.</p>
<p>Finally, on February 19, 2009, she &#119;&#097;&#115; diagnosed &#119;&#105;&#116;&#104; multiple sclerosis, a chronic disease &#111;&#102; &#116;&#104;&#101; nervous system &#116;&#104;&#097;&#116; &#111;&#102;&#116;&#101;&#110; affects young adults.</p>
<p>MS attacks &#116;&#104;&#101; protective sheath &#097;&#114;&#111;&#117;&#110;&#100; &#116;&#104;&#101; nerves &#105;&#110; &#116;&#104;&#101; brain and spinal cord.</p>
<p>THE first signs &#111;&#102; &#116;&#104;&#101; crippling disease emerged 12 years ago &#119;&#104;&#101;&#110; she visited her GP complaining &#111;&#102; numbness and tingling &#105;&#110; her feet. But she remained fully functional. Her rapid deterioration &#119;&#097;&#115; triggered &#098;&#121; Grace&#8217;s birth.</p>
<p>She &#119;&#097;&#115; put on a cocktail &#111;&#102; drugs, pills and injections, &#119;&#104;&#105;&#099;&#104; treated her symptoms, but &#100;&#105;&#100; &#110;&#111;&#116;&#104;&#105;&#110;&#103; &#116;&#111; halt &#116;&#104;&#101; disease and her downward spiral continued.</p>
<p>&quot;I could barely walk. I &#119;&#097;&#115; really &#098;&#097;&#100;,&quot; she says. &quot;I &#117;&#115;&#101;&#100; a wheelchair, a walking stick and a walking frame.&quot;</p>
<p>Mr Turner says: &quot;She couldn&#8217;t even get &#116;&#111; &#116;&#104;&#101; other side &#111;&#102; &#116;&#104;&#101; kitchen &#119;&#105;&#116;&#104;&#111;&#117;&#116; a walking frame.</p>
<p>&quot;&#097;&#115; &#115;&#111;&#111;&#110; &#097;&#115; she &#119;&#097;&#115; diagnosed, &#101;&#118;&#101;&#114;&#121; day she &#106;&#117;&#115;&#116; got worse and worse.&quot;</p>
<p>The couple were so desperate &#116;&#104;&#101;&#121; &#098;&#111;&#117;&#103;&#104;&#116; $1000 worth &#111;&#102; vitamins from a door-to-door salesman, who claimed &#116;&#104;&#101;&#121; &#100;&#105;&#100; wonders. &#111;&#102; course, &#116;&#104;&#101;&#121; &#100;&#105;&#100; &#110;&#111;&#116;&#104;&#105;&#110;&#103;.</p>
<p>She then heard &#111;&#102; bone marrow stem cell transplants &#098;&#101;&#105;&#110;&#103; &#100;&#111;&#110;&#101; &#105;&#110; Australia and she made an appointment &#119;&#105;&#116;&#104; Canberra neurologist Colin Andrews.</p>
<p>For years, Australians have &#098;&#101;&#101;&#110; flocking &#116;&#111; countries &#108;&#105;&#107;&#101; Switzerland and Israel &#116;&#111; have this treatment, &#119;&#104;&#105;&#099;&#104; &#104;&#097;&#115; &#098;&#101;&#101;&#110; &#097;&#114;&#111;&#117;&#110;&#100; &#102;&#111;&#114; &#109;&#111;&#114;&#101; than a decade.</p>
<p>Australian doctors were reluctant &#098;&#101;&#099;&#097;&#117;&#115;&#101; it &#119;&#097;&#115; &#118;&#101;&#114;&#121; risky. &#116;&#104;&#101; death rate &#119;&#097;&#115; 10 per cent, but &#104;&#097;&#115; fallen &#116;&#111; &#098;&#101;&#108;&#111;&#119; 1 per cent.</p>
<p>The first transplant &#105;&#110; Australia &#119;&#097;&#115; &#100;&#111;&#110;&#101; two years ago &#098;&#121; Perth neurologist &#098;&#105;&#108;&#108; Carroll and &#115;&#105;&#110;&#099;&#101; then a dozen have &#098;&#101;&#101;&#110; &#100;&#111;&#110;&#101;.</p>
<p>Dr Andrews says &#116;&#104;&#101; treatment stops &#116;&#104;&#101; progression &#111;&#102; &#116;&#104;&#101; disease, &#097;&#115; &#119;&#101;&#108;&#108; &#097;&#115; reversing &#115;&#111;&#109;&#101; &#111;&#102; &#116;&#104;&#101; &#100;&#097;&#109;&#097;&#103;&#101; it &#104;&#097;&#115; &#100;&#111;&#110;&#101;.</p>
<p>But it&#8217;s too early &#116;&#111; call it a cure. &quot;&#105;&#110; 70 per cent &#111;&#102; patients there &#105;&#115; no evidence &#111;&#102; occurrence &#111;&#102; &#116;&#104;&#101; disease over 100 months, but what happens &#098;&#101;&#121;&#111;&#110;&#100; &#116;&#104;&#097;&#116; &#119;&#101; don&#8217;t &#121;&#101;&#116; &#107;&#110;&#111;&#119;,&quot; he says.</p>
<p>Carmel and her husband pack &#116;&#104;&#101;&#105;&#114; little girl off &#116;&#111; live &#119;&#105;&#116;&#104; relatives and &#115;&#116;&#097;&#114;&#116; her stem cell bone marrow transplant &#105;&#110; Canberra.</p>
<p>Haematologist Dr Michael Pidcock likens &#116;&#104;&#101; process &#116;&#111; rebooting &#116;&#104;&#101; patient&#8217;s immune system.</p>
<p>SHE &#098;&#101;&#103;&#105;&#110;&#115; &#116;&#104;&#101; two-month course &#119;&#105;&#116;&#104; chemotherapy &#097;&#116; Canberra Hospital &#116;&#111; &#100;&#101;&#115;&#116;&#114;&#111;&#121; her faulty white blood cells, so &#116;&#104;&#101;&#121; no longer attack &#116;&#104;&#101; nerve sheaths.</p>
<p>Back &#097;&#116; &#116;&#104;&#101;&#105;&#114; rented Canberra flat, she &#098;&#101;&#103;&#105;&#110;&#115; &#116;&#104;&#101; gruelling daily task &#111;&#102; injecting &#104;&#101;&#114;&#115;&#101;&#108;&#102; &#105;&#110; her stomach &#119;&#105;&#116;&#104; a drug &#116;&#111; stimulate bone marrow growth.</p>
<p>Eight days &#108;&#097;&#116;&#101;&#114; she &#105;&#115; back &#105;&#110; hospital, ready &#116;&#111; have her bone marrow stem cells harvested.</p>
<p>She &#105;&#115; hooked &#117;&#112; &#116;&#111; a machine, &#119;&#104;&#105;&#099;&#104; her blood flows &#116;&#104;&#114;&#111;&#117;&#103;&#104; and it extracts her stem cells, collecting them &#105;&#110; a bag. Altogether six million stem cells are harvested, frozen and stored.</p>
<p>A month &#108;&#097;&#116;&#101;&#114;, she &#098;&#101;&#103;&#105;&#110;&#115; a heavy course &#111;&#102; chemotherapy &#116;&#111; knock out her immune system and any remaining bone marrow cells.</p>
<p>On November 3, her big day arrives and her harvested stem cells are re-infused &#105;&#110;&#116;&#111; her.</p>
<p>Days &#108;&#097;&#116;&#101;&#114;, her white blood cell count drops &#116;&#111; &#122;&#101;&#114;&#111; and &#119;&#105;&#116;&#104; no immunity, she feels &#118;&#101;&#114;&#121; sick, slipping &#105;&#110; and out &#111;&#102; consciousness.</p>
<p>&quot;&#109;&#121; wife doesn&#8217;t stop talking, but she didn&#8217;t utter a single word &#102;&#111;&#114; 24 hours.&quot; Mr Turner &#105;&#115; worried.</p>
<p>She develops two infections and &#105;&#115; put on strong antibiotics. She &#104;&#097;&#115; painful ulcers &#105;&#110; her digestive tract.</p>
<p>Eight days after &#116;&#104;&#101; transplant, her white blood cells increase, indicating bone marrow &#104;&#097;&#115; regenerated.</p>
<p>On November 18 Carmel &#105;&#115; discharged from hospital, returning &#116;&#111; Melbourne &#116;&#111; begin her new life.</p>
<p>She starts walking on her treadmill, sitting on her exercise bike and doing stretches &#102;&#111;&#114; 2 1/2 hours a day.</p>
<p>One &#111;&#102; her &#109;&#111;&#115;&#116; triumphant moments &#105;&#115; returning &#097;&#108;&#108; her aids &#8211; her shower chair, toilet seat and food trolley &#8211; &#116;&#111; &#116;&#104;&#101; council.</p>
<p>&quot;I&#8217;m starting &#116;&#111; get &#109;&#121; life back and hope. &#119;&#101; haven&#8217;t had any hope &#102;&#111;&#114; a &#118;&#101;&#114;&#121; long time,&quot; she says.</p>
<p>&quot;&#121;&#111;&#117; feel &#108;&#105;&#107;&#101; you&#8217;ve gone &#116;&#111; hell and back and you&#8217;re finally coming home and &#103;&#101;&#116;&#116;&#105;&#110;&#103; better.&quot;</p>
<p>She hasn&#8217;t needed her wheelchair &#105;&#110; &#116;&#104;&#114;&#101;&#101; months. It &#105;&#115; folded &#117;&#112; and tucked &#098;&#101;&#104;&#105;&#110;&#100; &#116;&#104;&#101; washing machine gathering dust.</p>
<p>&quot;I feel 100 per cent better than what I &#119;&#097;&#115;, I have no pain, I don&#8217;t &#099;&#114;&#121; myself &#116;&#111; sleep any &#109;&#111;&#114;&#101;,&quot; she says.</p>
<p>&quot;I have &#110;&#111;&#116; had one stabbing pain &#105;&#110; &#109;&#121; brain.</p>
<p>&quot;I have &#110;&#111;&#116; had one pain &#105;&#110; &#109;&#121; spinal cord &#115;&#105;&#110;&#099;&#101; I had &#116;&#104;&#101; treatment.&quot;</p>
<p>WHILE she no longer &#104;&#097;&#115; MS, &#116;&#104;&#101; &#100;&#097;&#109;&#097;&#103;&#101; it wreaked remains, but she hopes it &#119;&#105;&#108;&#108; &#115;&#116;&#097;&#114;&#116; &#116;&#111; repair itself.</p>
<p>&quot;I&#8217;ve only got a 20 per cent chance &#111;&#102; &#104;&#097;&#118;&#105;&#110;&#103; another attack, so hopefully this &#105;&#115; &#116;&#104;&#101; end &#111;&#102; it,&quot; she says.</p>
<p>Ms Turner &#104;&#097;&#115; &#098;&#101;&#101;&#110; embracing &#116;&#104;&#101; simple things &#105;&#110; life, &#108;&#105;&#107;&#101; tucking her daughter &#105;&#110;&#116;&#111; bed &#097;&#116; night and &#116;&#097;&#107;&#105;&#110;&#103; her &#116;&#111; &#116;&#104;&#101; park.</p>
<p>She &#104;&#097;&#115; her first follow-up medical appointment &#110;&#101;&#120;&#116; week, an MRI scan.</p>
<p>Dr Andrews says he expects &#116;&#104;&#101; MRI &#116;&#111; &#115;&#104;&#111;&#119; a lot &#111;&#102; improvement, but there &#109;&#097;&#121; &#115;&#116;&#105;&#108;&#108; be &#115;&#111;&#109;&#101; evidence &#111;&#102; &#100;&#097;&#109;&#097;&#103;&#101; from before.</p>
<p>But &#102;&#111;&#114; &#110;&#111;&#119;, Carmel Turner &#105;&#115; &#106;&#117;&#115;&#116; enjoying &#098;&#101;&#105;&#110;&#103; a normal mum &#102;&#111;&#114; &#116;&#104;&#101; first time. &#116;&#104;&#101; new chapter &#104;&#097;&#115; &#119;&#101;&#108;&#108; and truly begun.</p></p>
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