HELP! I have exessive mucus in throat, burping up acid, and kinda short breath. Help! I don't want to die!

what ur symptoms sounds like is acid reflux. cystic fibrosis some of the symptoms for that is depression and body aches,sore joints, and dizziness; those are some of the symptoms for cystic fibrosis. if u really want to get a full list of it google it or go to ur doctor.

if youre old enough to type that question out and havent been diagnosed with CF yet, you probably dont have it. its a severe disease so usually its not something that would go unnoticed and you dont just suddenly get it. you probably just have a cold or bronchitis or something of that nature, maybe at worst mild pneumonia. see a doctor if it doesnt get better.

I don't think you have CF. there are many forms of CF tho. my brother's symptoms included salty skin (no liquid to sweat, just salt crystals), fatty bowel movements (as in ..completely liquid, orange in color and EVERY time…), extreme excessive mucous, nasal polyps, difficulty gaining and retaining weight, loss of appetite, or the complete opposite, extreme appetite with little results from eating non stop, difficulty breathing, etc.
Oh…and it is not an illness that is just for children, most of the time kids are diagnosed (now days) by their first birthday, but there are still a few mild cases that go un noticed until teen or adult hood. It is also a life long illness, it is a terminal illness. there is no cure, and it's not like the chicken pocks where you get it once and then you're fine…It involves a lifetime of medications, doctor visits, tests, pokes, and more meds!

Cystic Fibrosis is something your born with not something you develop later in life.

I looked up some syptoms for you. the following are the most common symptoms for cystic fibrosis. However, each child may experience symptoms differently. Symptoms may include:

abnormalities in the glands that produce sweat and mucus
This may cause a loss of salt. a loss of salt may cause an upset in the balance of minerals in the blood, abnormal heart rhythms, and, possibly, shock.

thick mucus that accumulates in the lungs and intestines
This may cause malnutrition, poor growth, frequent respiratory infections, breathing difficulties, and/or lung disease.

Don't worry, just go to your doctor. (BTW normally this is a disease for kids)

Many illnesses that are present in the world today can be unavoidable for some, because of their inherited qualities. Though there are various types, one of the most common and deadly is Cystic Fibrosis.

Cystic Fibrosis, or CF, causes thick mucus to build up in the lungs, digestive tract, and sometimes other organs within the body. the buildup is created because of a defective inherited gene, and the mucus collects in the lung passages and in an organ that helps to break down food, the pancreas.

Because the disease is brought on by heredity, unfortunately, many do not have a chance in avoiding it and it is inborn. There are many Americans that carry the gene that is responsible for CF but do not realize it because they do not experience symptoms, themselves.

Individuals that suffer from the disease must inherit two defective Cystic Fibrosis genes, one from each parent. it has been estimated that one in every twenty-nine Americans of Northern or Central European descent have this specific gene that could potentially cause the disorder in future children.

Most individuals that suffer from CF are diagnosed by the age of two, because the symptoms are present in infancy; however, there are some that may not be diagnosed until the age of eighteen because their condition is milder. it can sometimes be difficult to determine the disease in infants, especially because there are so many different degrees of seriousness and more than a thousand various mutations of the gene that causes Cystic Fibrosis.

Some tell-tale signs may be delayed growth, a lack of bowel movement in the first day or two after birth, salty-tasting skin, and an inability to gain weight during childhood. Other symptoms that relate specifically to the disease are belly pain, nausea, bloating, coughing or increased sinus blockage, fatigue, and recurring episodes of the sickness pneumonia.

Probably the best and most effective way to determine whether or not an infant or child suffers from the disease is to have a blood test performed. if any of these symptoms are manifested at any time within the first few years of birth, it is best to take the child into a physician for a health evaluation or testing.

Other tests that may be used to diagnose the condition are a fecal fat test, secretin stimulation test, or a CT scan. Having a child that suffers from the aforementioned symptoms can be hard for adults, as well, especially when they are unsure about what is wrong.

Unfortunately, there really is no way to prevent Cystic Fibrosis, seeing that it is inherited from the parents and nothing can really be done about their genetic makeup. Those that are worried that they may be carriers of the gene or have a family history of CF may want to be screened or tested.

There is usually around a sixty to ninety percent success rate, depending on the type of screening method that is used. Children that do suffer from CF should be able to live a pretty normal childhood, including going to school and participating in sports and physical activity.

The sooner the disease is diagnosed, the sooner your physician will be able to create a treatment plan. This usually means a higher life expectancy and an easier time overall for your child.

It is usually vital to maintain a good schedule of monitoring with your doctor to make sure that the individual affected is experiencing somewhat proper functioning of the lungs and digestive tract. There are a number of Cystic Fibrosis focused clinics where you can possibly receive treatment; those that are interested in these types of medical establishments should contact their doctor or insurance company.

As far as medications go, many prescribe antibiotics to prevent and treat infections, medications that are inhaled and open airways, vaccines, oxygen therapy, and sometimes a lung transplant, if necessary and available. Parents can possibly help reduce the amount of symptoms that their child experiences by making small lifestyle changes.

These include avoiding dust, mildew, smoke, and cleaning fumes within the home, performing chest percussions/postural drainage, making sure the child gets enough exercise, and drinking enough fluids. unfortunately, this disease can weaken the lungs and body so much that there is usually not a very long life expectancy for those that suffer with from the disease.

Children may be able to live normal lives, but as they age and enter into adulthood conditions usually worsen. As they get older, the lungs have to work harder to provide the body with necessary oxygen, and this can weaken and wear out this organ and the airways.

Often, individuals become disabled and may eventually die due to lung complications. the life expectancy for someone suffering from Cystic Fibrosis is around thirty-five years, but this number can be larger or smaller depending upon the severity and the lung health.

Individuals who suffer or parents who have children with CF can find help and assistance through support groups. Though this disease does not provide a positive prognosis, patients can still live full lives.

Tommy Greene has worked in surgical equipment sales for the past 15 years. He has great advice and information on Diathermy units.

megadyne.com/es_generator.php

Parents talk of challenge taking care of daughter Lauren

10:40am Thursday 28th April 2011

• Print
• Email
• Share

a mum has spoken of the heartbreak she feels every day over her daughter living with a disease that may shorten her life – and her hope that one day a cure will be found.

Two-year-old Lauren Birch has Cystic Fibrosis (CF), a disease that shortens life and inflicts a considerable daily treatment burden.

It is caused by a defective gene that results in internal organs, especially the lungs and digestive system, becoming clogged with thick, sticky mucus.

Lauren has to take more than six different medicines a day and have physiotherapy to clear mucus. She also requires occasional hospital stays and courses of intravenous antibiotics.

Now, ahead of Cystic Fibrosis Awareness Week (May 8 to 14), her parents Jonathan and April Birch, of Kensington Street, Keighley, have spoken out in the hope of raising awareness of a disease for which there is no cure.

“Having Lauren suffering with Cystic Fibrosis has thrown us into a different world, worrying about her catching a cold or cough or tummy bug just has a whole set of new implications that we’d have never thought of before having her,” said 29-year-old April.

“Monitoring everything she eats and calculating the fat as we make her food to make sure we medicate correctly can be exhausting. It breaks my heart daily that she has to live with this disease and we do everything we can to make life as normal as possible. But the simple fact is her life isn’t and never will be normal unless a cure can be found.

“As morbid as it sounds, our worst fear is knowing one day whether ten, 20, or 30-plus years down the line, our reality could be burying our child.”

during CF awareness week the family is doing a collection via virginmoneygiving.com/team/Workouts and at Workouts Health Club in Shipley.

anyone who donates money will be entered into a free prize draw.

There is also a running challenge at Workouts Health Club for the members where all proceeds will also be donated to the CF Trust.

Money raised during Cystic Fibrosis Week will help the Cystic Fibrosis Trust fund medical research to fight the symptoms of and treat the cause of CF. Visit cfweek.org.uk

Read these Keighley stories

what is the direct biological effect of cystic fibrosis?
also, the major symptoms, and who is and/or how many are effected by the disease.

cff.org is the best source.

Working with different programs of treatment ought not to take the place of prescribed drug treatments and physiotherapy. there are many methods of treatment which a cystic fibrosis patient could take part in to help preserve their health. please, prior to starting any kind of different therapy or anything supplemental to exactly what the physician prescribes drop by and see your general practitioner!among the greatest ways to remain healthy is by taking exercise. Physical exercise has lots of benefits to healthy individuals and even more benefits to those people suffering from cystic fibrosis. Exercise brings balance to your body. it lowers stress, assists in easing tension and gives your body essential oxygen. For those people who have cystic fibrosis, physical exercise could well help in keeping thick mucus loose and expand lung capacity.Just what can a teenager do in order to help to increase their lung capacity and minimize stress? they might possibly wish to join in a team activity. Being a member of a team increases self-confidence and increases self-esteem. if you have always been active, continue to do just what you can by way of physical exercise. Jogging, going for walks and trampolining are just some activities which you might take part in. Combining physical activity with meditation can possibly build toward better health and a far more optimistic outlook on life. Physical and psychological activities will assist in balancing your body and lower stress and tension. you would probably opt for an activity which suits you and is within your physical boundaries.Mixing physical activity with simple meditation may possibly help to improve your frame of mind and keep you healthier. Walking through you park, running or riding a bike around a nature path are all excellent examples of exercise that may well help a cystic fibrosis sufferer to remain healthy.Meditation is very good for everybody. Prayer, meditation, Yoga and other styles of meditation as well as controlled movements are beneficial. Try Martial Arts, Chinese Yoga, aerobics or dancing. Swimming is a useful form of physical exercise that could possibly have a calming influence on your spirit and supply you with a really good workout. it is recommended that you steer clear of chlorinated waters. you ought to attempt to swim in waters rich in minerals like the sea.Weight lifting, gymnastics and just about any type of exercise you can think of will assist with your treatments. Commencing an exercise is simple and easy. take a short saunter around the block each day and build up by walking for two blocks or by taking your short walk twice a day. any exercise is better than none at all and there are just three rules! Do not exhaust yourself, always exercise on a full stomach and be careful not to injure yourself. you might possibly go for a stroll once you have eaten.Sweat therapy is another fantastic way to rid your body of toxins but be careful so that you do not allow yourself to get dehydrated. Sweating is a good way to clear toxins and to keep mucus loosened. there are numerous ways in which you can accomplish sweat therapy. Work out with quite a few clothes on, use a sauna and drink warm coffee or tea in a room that is already very warm. you may very well also try eating spicy food items. Hot chili powder and other zesty food items will cause you to sweat. it is well-known that several toxins and chemicals can simply be eliminated from the body by way of the sweat glands.

what are the symptoms associated with cystic fibrosis?
hi people my friends i need your help i have to anwer this question but i couldn't anwer it..
please help me
thank you
love you

Your body will produce tons of extra mucous, affects your respiratory system.

Cystic fibrosis is a life-threatening affliction acquired by a abnormal gene and affecting about 30,000 accouchement in America. there is no cure for it so far, but there are lots of able abstracts and analytic studies activity on to accession a abiogenetic appraisal to cure cystic fibrosis.

Humans transmit the genetic code to the next generation through DNA, containing 23 pairs of chromosomes. the seventh chromosome contains the defective gene that causes cystic fibrosis. there are over ten million Americans who this defective gene without having the disease. When both parents are carriers there is a 25% chance that the child will have a recessive gene; that is, the child has two copies of the defective gene from both parents. this gene signals the epithelial cells to produce cystic fibrosis trans-membrane conductance regulator (cystic fibrosisTR). it is a bad protein found in the digestive system, skin and reproductive system of cystic fibrosis patients.

When the cystic fibrosisTR is not normal, the regulation of salt through the membranes becomes defective. this results in the secretions of the lining such as mucus, digestive juices and sweat, becoming thick and sticky.

The respiratory system secretes thin and slippery mucus to clear away the foreign bodies and microorganisms that invade the system. in cystic fibrosis patients this mucus, thick and sticky, not only fails to clean the system but also blocks the lungs and airways and creates a life-threatening problem with the respiratory system. As the microorganisms are not cleared there are serious infections, like bronchitis, pneumonia and influenza. So a cystic fibrosis patient has to take care of his respiratory system constantly, with bronchodilators, electrical clappers and electrical inflatable vest vibrators. Newer antibiotics control the infections to a good extent.

In the digestive system the ducts between the pancreas and intestine and between the liver and intestine are blocked. due to the shortage of enzymes and bile, the cystic fibrosis patient is unable to digest fats and proteins. He becomes malnourished, underweight and weak. Enzyme and vitamin supplements take care of the problem to an extent. in the reproductive system the duct between the testes and prostate get blocked, and so a majority of cystic fibrosis patients are sterile.

Cystic Fibrosis Symptoms

Cystic fibrosis is a very serious disorder that is fatal if not treated properly. a defective gene causes thin body secretions, such as lung mucus, digestive juices, sweat and reproductive secretions, to become thick and sticky. serious and life-threatening problems may arise due to this thickening. there is no permanent cure for cystic fibrosis yet, but symptomatic treatment is given.

When the lungs and airways are choked, the cystic fibrosis patient coughs and produces very thick sputum. He is short of breath and develops wheezing. Polyps may grow in the nasal passages. the frequency of sinus, chest infections, pneumonia and bronchitis increase.

As the digestive juices do not reach the intestine, due to blocked ducts from the pancreas and liver, the fats and protein are not digested. the stool is bulky, greasy and foul smelling. the cystic fibrosis patient may have excessive appetite but is undernourished and underweight, as the food is not digested properly for absorption. a trypsin test may indicate whether sufficient enzymes from the pancreas are available for digestion.

The sweat may taste salty. When we kiss a child with cystic fibrosis we can taste this excessive salt taste. To diagnose cystic fibrosis positively we measure this saltiness in sweat. Technicians coat an odorless chemical on a small area of the skin in the arm, and stimulate that area with electric current to produce copious sweat. this sweat should contain about 40 m mol/l in a normal person. above 60 m mol/l of salt in a sweat test will confirm the diagnosis of cystic fibrosis. With cystic fibrosis patients the duct that connects the testes and vas deferens may get blocked. Most cystic fibrosis patients are sterile.

Treatment is mainly to ease the symptoms and lead a normal life in spite of the malady. Bronchodilators and mechanical vibrators keep the lungs and airways clear. Enzyme and vitamin supplements keep the digestive system near normal. With correct lifestyle management Americans are living to their 30s and 40s with cystic fibrosis.

Cystic Fibrosis Treatments

Cystic fibrosis, which affects 30,000 American children and adults, is a multisystem disease caused by a defective gene. Presently only symptomatic management is possible, but there are very promising gene-therapy trials under way.

In the respiratory system the thin mucus lining becomes thick and sticky. in cystic fibrosis management, the primary treatment of the system is to thin or clear this mucus. Bronco dilators like albuterol are used to clear the clogged airways. Mucus thinning drugs delivered by aerosol, like pulmozyme, are helpful. the most effective way of clearing this mucus is by mechanically dislodging it. Clapping on the chest and back, with the head tilted on the edge of a table, is quite effective. there is an electrical clapper that does the job safely. there is an electrical inflatable vest that vibrates and dislodges the mucus. Infection is an ever-present risk with cystic fibrosis patients. Regular shots for pneumonia and influenza are very important. Bacterial infection is fought with newer antibiotics like TOBY, which delivers the medicine directly into airways with aerosols.

Because of the blocked ducts of the pancreas and liver, the enzymes and bile do not reach the intestine. though the patient eats normally or even in excess, the fats and proteins are not digested. So the cystic fibrosis patient needs to have the enzymes supplemented with oral pancreatic enzymes. there is also the need to take vitamins, especially the fat-soluble ones. if lung function is completely damaged, the only alternative would be lung transplantation. this would involve many factors, like the availability of a donor and the patient’s present health, prior to undergoing major surgery.

The Cystic Fibrosis Foundation has 115 centers all over America, and provides guidelines and advice. they support many studies to find gene therapy to cure cystic fibrosis. the target is to add normal genes to the cells of the airways to prevent further damage. Biotech laboratories produce healthy genes, which need to be delivered to the appropriate cells. these vectors, or delivery systems, are the key areas of research to combat cystic fibrosis. One method that is actively pursued is to modify the common cold virus to carry the healthy genes into the correct cells. on another track, the DNA molecules are compacted to their minimum size and delivered directly to the relevant cells without the need for a carrier such as a virus. this technology is called PLAS min.

As this gene therapy experiments are at an advanced stage, the cystic fibrosis sufferers can hope for a permanent cure in the near future.

Incoming search terms:

For example if you're skin isn't salty tasting, could you still have CF?

Cystic Fibrosis is something you are BORN with, its a lung disease!

Google it!

If you had cystic fibrosis you would have been diagnosed long before you learned to type. Everyone is tested at birth and if not, the symptoms show up when you first take food.

What other symptoms were you having that prompted the docs to test you? I have heard of people being diagnosed as late as in their 30's believe it or not. there was a gentleman in my area who for years had a terrible time breathing but was attributed to his work environment, however, they finally tested him and he has CF. I have a son with CF and he was born in 1990, he was not genetically tested at birth and but was diagnosed at 3months. My son does have salty skin.

Vertex Pharmaceuticals inc. (VRTX – Snapshot Report) recently reported positive data from a late stage trial on VX-770, being evaluated for the treatment of cystic fibrosis (CF). In the phase III (STRIVE) trial, which compared VX-770 with placebo, all the primary and secondary endpoints were met. Following the trial results, the Vertex Pharma’s share price shot up 15%

The study, which enrolled 161 patients aged 12 years and older, dosed either VX-770 (150 mg) once daily or placebo twice daily. The trial data demonstrated that the candidate helped in improving the lung function (forced expiratory volume in one second, or FEV1) through week 24, which was then sustained through week 48, as compared with those who received placebo.

The data from the trial also showed that VX-770 met the primary endpoint of achieving a mean absolute improvement in lung function (10.6%) from baseline through week 24, when compared to placebo. Mean absolute improvement in lung function among those treated with the candidate through week 48 was 10.5%.

VX-770 also met the secondary endpoint in the study through week 48. 67% of the patients on the drug did not experience a pulmonary exacerbation (periods of worsening in signs and symptoms of the disease requiring treatment with antibiotics), compared with 41% of the patients who received placebo.

On average, patients who were given VX-770 gained nearly seven pounds through 48 weeks. Moreover, there was a reduction in the amount of salt in the sweat (sweat chloride) and fewer respiratory symptoms among people treated with VX-770.

We note that STRIVE is one of three studies being conducted with VX-770. The other two include the phase II DISCOVER trial and the phase III ENVISION trial.

Vertex Pharma also reported data from the DISCOVER study, which was conducted to provide additional safety data to support the new drug application (NDA) submission for VX-770. The trial did not demonstrate a statistically significant improvement in treating CF patients with the candidate when compared with placebo.

Results of the ENVISION trial, which is being conducted in children aged 6-11 year, are expected to be released in mid-2011. Vertex Pharma plans to make the US and European regulatory submission for VX-770 in the second half of 2011.

once approved, Vertex Pharma could face competition for VX-770 from ataluren, which is being developed by PTC Therapeutics, inc. in collaboration with Genzyme Corp. (GENZ – Analyst Report). Ataluren is currently in a late-stage trial.

Vertex Pharma also has a phase IIa trial in progress evaluating VX-770 in combination with VX-809 in people with two copies of the F508del mutation. The first part of the study will evaluate VX-809 (200 mg), or placebo dosed alone for 14 days and the next part will evaluate VX-809 in combination with VX-770 (150 mg or 250 mg), or placebo, for the seven days. Vertex Pharma plans to report data from the first part of the trial in the first half of 2011.

We note that VX-770 has fast track status in the US and orphan drug designation in the US and Europe.

Our Take

We currently have a Neutral recommendation on Vertex Pharma, which is supported by a Zacks #3 Rank (short-term Hold rating). The positive data and the eventual approval of VX-770 should help in the long-term growth of the company. meanwhile, another key candidate in Vertex Pharma’s pipeline, telaprevir, is currently under regulatory review for the treatment of hepatitis C virus. The US Food and Drug Administration (FDA) has set May 23, 2011, as the target date for telaprevir.

do you or someone you know suffer from cystic fibrosis? what are your symptoms like?? how do you manage?? I just looked it up online because of the symptoms ive suffered since i was a kid. and this is the first thing ive ever seen that has made any sense to me. I want to ask my Dr. to test me for it. how do they test you?

I don't think you have it or you'd know about it.