Question

Recently, a friend of mine attended the funeral of one of her former students.  The little girl died of diabetes.  Her parents thought she had the flu.  They didn’t take her to the doctor.  She went into a coma at night and never woke up. my heart goes out to her parents.  their pain is unimaginable. my question is: is there any way to tell when child has diabetes when there has been no other sign or warning?  This little girl got sick on the weekend and was dead on Tuesday. our health insurance put out a very slick book about when you should and shouldn’t take your child to the doctor.  It’s designed to keep costs down.  Even our pediatricians office has a similar booklet for parents. I usually take the wait and see road, myself, when either I, or my children are sick.  now, though, I’m not waiting for anything.  I’m scared. does any one know the symptoms of the onset of juvenile diabetes?

Answer

My mom has seen various friends of my brothers’ come down with juvenile diabetes, and after the first one, she suspected it well before the kids’ mother did. what she noticed was an incredible thirst, like downing 3 consecutive glasses of milk. The reason for this is that sugar in the blood rises and rises (as the pancreas cannot make insulin to keep up with this normal occurrence), and the reaction is to get thirsty in an attempt to dilute the sugar. of course, water would help (maybe), but juice or milk simply increases the blood sugar further, so the problem is exacerbated. With diligence and education, it is possible to live a long and healthy life with juvenile-onset diabetes, even though the body produces absolutely no insulin (unlike adult-onset diabetes, where pancreatic function is impaired to varying degrees).

Associated Juvenile Diabetes Symptoms Question: In responce to Aleta’s request of juvenile diabetes symptoms. Frequent urination, no energy, weight loss are the most common symptoms. I’m not suprised that it wasn’t caught in time, many doctors seem to think everytime a kid is ill that he/she has a cold and do nothing about it. I was diagnosed with juvenile diabetes in 1966 at the age of 5. it took them a while to figure out what was wrong with me and as a result I slipped into a coma. my parents didn’t have any idea, I guess parents don’t famaliarize themselves with the condition if its never struck a family member before. The Canadian Diabetic Association have an active ad campaign right now that state over half of the countries diabetics don’t even know they have the disease. In this add they give out some of the common symptoms. This is probably why diabetes is still up in the top five for leading cause of death. many don’t even know they have it.

• Answer: The same with my parents.  I wasn’t complaining about anything, and so I had about 6 weeks of onset before they took me to a hospital one night about midnight.  I was 15. Symptoms over the past month included:  greatly reduced grades at school — from 4.0 to 2.0 work;  radically changing vision (i.e. day to day, my optometrist missed it, and apoligised later for not realizing that the vision chance was because of diabetis); and of course the request urination and thrist. Once at the hospital, I was so dehydrated that it took a couple tries to get a needle into my arm.  OTAH, they diagnosed me in about an hour.  I agree with Scott — parents don’t think that such diseases will hit their children if there is no family history, and we were all quite blind to the symptoms that were indicating that _something_ was  wrong until I was almost in a coma.

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There is little doubt that Kayla Bowyer is a special young woman. The 18-year-old Dinwiddie County native was diagnosed at 3 months old with cystic fibrosis. Doctors gave her no more than 10 years to live.

Now Kayla has grown to be a confident young woman, who has learned to live her life with death as her constant companion. with her uncompromising optimism and strength, she has touched and inspired family members, friends and everyone else who has come into her life.

In her young life, Kayla has seen good friends die of the same disease. She has learned to withstand pain and discomfort. She has learned to deal with the countless treatments, pills, hospital stays and a few brushes with death.

She had to accept that she might never be able to hold a job for longer than a few days, that she may never get married nor have children. And she is uncertain about how to pay for her medical care in the not too distant future.

But a dedicated group has rallied around Kayla to at least help her with her medical bills. on Friday night, a benefit was held Kayla, sponsored by the Colonial Heights Jaycees. The event at the Petersburg Civic Center featured live music and silent auctions.

Admission was $10, but the Jaycees will accept additional donations for Kayla.

Currently, Kayla is covered under her father’s health insurance, and since health care reform kicked in, she will be able to stay with his plan until she is 26. Kayla will eventually need a double lung transplant. The transplant is covered by their health insurance provider, but some of the medications, such as the anti-rejection drugs, are not. Kayla’s condition costs at least $10,000 in co-pays and prescriptions every year – a constant financial challenge.

But money is probably the least of Kayla’s concerns. She has had death as a constant companion in her young life. once Kayla had learned of her disease, she was determined to not let it define her. “I had a happy childhood,” she says. “I actually had fun when I had to go to the hospital, because I didn’t have to go to school.”

At the hospital, she often made friends with other CF children. While death constantly lingered over all of them, Kayla made a point to not think about it.

But there was no escape from it. “It was perfectly normal for me to make friends at the hospital, and when I came back two months later, they’ve died,” Kayla says

Kayla met Tommy in the hospital, when she was 5 years old. Tommy had CF, like Kayla, and they quickly became friends. when Tommy died in 2008, something changed in Kayla.

“We grew up together. it really hit home,” Kayla says. Today, she has his name tattooed on her back. And she thinks more about her own mortality.

Cystic fibrosis, a condition without a cure, is caused by a mutation in the gene for a protein called cystic fibrosis transmembrane conductance regulator, which regulates sweating, digestive juices and mucus. Among the more serious symptoms are breathing difficulties caused by lung infections. Other symptoms include sinus infections, diarrhea, poor growth and infertility. About 30,000 Americans have CF. Few make it past their 30s.

After graduating from Dinwiddie High School last year, she moved in with her dad, Roger Bowyer, and his new wife in Hopewell. For a while, she worked at a pet store, but that didn’t last very long, because of the many sick days and hospital stays.

“This is the life I know,” she says, sitting on a couch in her dad’s Hopewell home, wrapped in a blanket. “I’ve never known anything else.”

At home, Kayla’s entire day evolves around her condition. because she hardly digests anything, she must eat at least six or seven times a day, and must take in twice as many calories as a healthy adult, which is not easy. Kayla also suffers from diabetes, related to her CF.

She takes more than 50 enzyme pills every day, which help her digest food. And four times a day, she lays on the floor, on her side, while her dad attempts to push out the mucus in her lungs. CF patients get lots of mucus deep inside their lungs – a dark place and a breeding ground for bacteria.

But Kayla doesn’t complain – ever. “I don’t see myself as any different,” she says. Self-pity is a concept foreign to her.

And Kayla’s father does his best to stay positive – for his daughter, but also for his own sanity. “If I was to sit back and dwell on my daughter dying, what quality of life would we have?” he says. “Instead, I have always made sure to give her good memories, and it is my belief that life is not about quantity, but quality.”

But what keeps Kayla most alive is her will to live. “I love my friends,” Kayla says. “When I am with them, I really don’t think about anything else.”

The Bowyers feel that they have come this far because of the support from family and friends. And her supporters believe that Kayla Bowyer is more than a kind, courageous young woman. “She is not one of us, she is an angel sent here to teach us the truth about life,” says Douglas Hamilton, a family friend and supporter.