Life with The Jones: What are your symptoms?

by Symptom Advice on March 29, 2011

I wanted to post an update in regards to Lyme disease treatment. I was having a conversation with a new friend of mine, she was asking what my symptoms are for Lyme disease. I had to think a little bit harder than I have in the past when asked the same question…that was a good sign! when I tell someone what the symptoms are; I share what my symptoms are first…its easier to explain something you are very familiar with like feeling specific pains everyday vs. remembering other symptoms of Lyme that I dont have. It is different for each person and depending on how long you have had it, the severity will be different. Here is a more detailed list, you’ll see why I refer to my own rather than THE list! Lol! Check it out if your interested:lyme-disease-research-database.com/lyme-disease-symptoms.html
As I was telling my friend about my symptoms I was realizing that a few of them are gone and alot of them are lesser in the severity. What encouragement! I’m very thankful for all the medicine I’m on…even though I hate it…its working. Jeff & I have been on a herbal protocol Samento since April 2010 (so a little over a year now) I have been on antibiotic treatment Clarithromycin since July 2010 (about 7 mos.) Bicillin injections since October 2010 (about 5 mos) Ciproflaxin since December 2010 (about 3 mos)
When I asked my Lyme Literate doctor how long we would be on treatment; she said about 2 years. So, I’m encouraged to look at the big picture and see that its coming close to 1 year being treated. hopefully just 1 more year will rid us of these buggers for good! There are always stories of people stopping treatment and then getting sick again~ or roadblocks/complications that come up. For instance Jeff was on Bicillin injections and simply his body could not tolerate it. he had major reactions to the medicine and had to stop. we are waiting until our next follow up appointment (phone consultation) with our doctor to see what alternate treatment he should be on. Our treating LLMD is in California, wich works out for us to have phone meetings only and we will see her this summer when we visit our family in California; but we are searching for a doctor here as well. There is a naturopath doctor I will be checking out as well as we are seeking a primary care physician who will hopefully work in conjunction with out LLMD that way some meds could be covered with insurance. were not sure if it will work- its very difficult getting insurance to cover Lyme treatment; sometimes impossible. but with a cost of around $500 a month in medicine…..we need insurance to cover some of this! So please pray with us in regard to this.So, treatment is going good and we are getting better slowly. There seems to be more good days than bad days lately. Thank you everyone for your prayers, and support. Many of you have helped us finacially through this journey and we are very greatful. this is road that we dont walk alone because of many of you! thanks & God bless~

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