Bedridden with MS (Multiple sclerosis symptoms) how long do people with this usually live?

by Symptom Advice on January 27, 2011

sorry its such a long question :I i jusrt wanted to know, because my grandmother is bedridden with ms, and has been for about 40years (she is 56), she is in hospital at the moment in ICU, she nearly died, id go into detail but yeah, really appreciate real answers, thanks (: xx (oh and im 13, lol )

"a small number of patients have malignant MS, which is marked by a rapid decline that leads to disability and possibly death. MS is rarely fatal, however, and most people with the disease have a normal life expectancy." ( Ed Zimney MD, Health Talk Medical Reference.)

You can die from some of the complications arising from having MS – usually respiratory distress or pneumonia. one study states that: "Median observed survival time was 38.0 years from symptom onset."

"the simple, profit-free truth is: a healthy diet can stop this disease. a hard look at the evidence will lead all but the "financially tainted" to the conclusion that the time has long passed to change the way people with MS are treated."

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Maddy, you poor thing. I feel for you and your family. My daughter is 18 now, but was about 7 or 8 when I was diagnosed. Thank the Lord I'm functioning and walking. There is no timetable for MS. its a very individual disease. unfortunately that's as real an answer you're gonna get. I'm sorry you're going through this, but as with any illness, enjoy the people you love for as long as you have them with you. Stay strong.

Hi, Maddy,

MS is an illness that is often compared to a roller coaster. People can have very serious symptoms and then go back to feeling better.

Many people with MS have been diagnosed with CCSVI (Chronic Cerebral Spinal Venous Insufficiency) which means that they have a thickening in their veins where the blood drains from the brain. Veins take the cellular waste away from the brain. When they are thick or blocked, they don't do a good job removing the wastes and a buildup of iron or other unneeded elements sits in the brain and can add to the difficult physical symptoms of MS.

A doctor in Italy named Dr Zamboni (yes, just like the machine that smooths the ice before hockey games), found these blockages and came up with a way to open the veins so that the blood can drain more freely. here is some more information: sanoviv.com/medical-services/ccsv… and en.wikipedia.org/wiki/Chronic_cer…

It would be good if you shared this information with your parents, or your grandmother when she is feeling better. That way you can be part of the team that is dedicated to your grandmother's improved health.

Wishing you and your grandmother a healthy and happy year.

Sorry about your grandma. MS itself is not fatal. usually the complications brought about by the illness are responsible for the death of a person with MS. these complications can range from bed sores getting to something much worse to liver and other internal organ problems.

I am not a doctor but as a person with MS for the past 14 years I can assure you MS is not terminal.

Take care and be well,

Alex

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