I am looking forward to winter. Because downhill skiing allows me to sit alot, I’ve been able to continue this sport until last year. My right leg was too week for me to feel comfortable with turns.
This year, I have a new outlook. I’m lucky enough to enough to live in a skiing mecca and adaptive skiing lessons abound and I’m doing it.
Posted by BJG55
It’s been a difficult few weeks with lots of painful spasticity. not sure if I can blame the weather, since it’s been in the 50s and 60s…I have heat sensitivity and live indoors in the summer…but the spasms are bad when it’s cold too.Just can’t win against this stupid disease sometimes…
Posted by Debbie from Naperville, IL
I can say that I live inside during the warmer months i love fall and winter and spring…. right now though i am having pain in my neck and shoulder muscles due to the cold snap. i also have ankylosing spondyolitis , they deffintly are at war in my body.
Posted by Karen from Lancaster, pa
I generally feel better in cooler weather because of heat related fatigue. But my knees often feel worse in cool weather because the cold stiffens them up. there are not less flexible just slower. Neoprene knee supports help to add warmth but I don’t like to rely on them too much for strength – makes me lazy.
Posted by Nancy
BINGO Trevis!! My MS always acts up when the seasons change!it takes my body about 2 weeks to acclimate to the change. once it does, I start feeling better. I am definitely a cold weather gal. This past summer was awful for me. The fatigue thing was bad. Now that I am getting used to cooler temps, I have more energy.My balance still sucks though,,oh well you can’t have it all.
Posted by monjamonja
Summer is on the way here in sunny (wot I mean is bluddy hot!!) Perth, Western Australia!Today it got to 37 (that’s around 97F). Eich.We had new lawn turf put in (roll on lawn) on our verge (dunno waht this is called in the USA – it’s the lawned part between the path and the street) coz the school across the road had it dug up for underground high voltage pwer access…via under the road…7 weeks ago!Surprisingly, I have remained very calm (should have noted this under the “mountains” topic)through all the digging, heavy machinery noise, thumping and crunching, banging and bashing at 7AM, numerous mornings across all these weeks; and today, the new lawn. Looks luverly, but I have to continue to remember (with help from Hushbum) to water it at least 3 times a day so it survives. Certainly not the best weather to install new lawn….certainly not the best weather for Rusty with MS. I stood under the sprinklers a couple of times when I had to go out and chat with the tradies (workers). it was the only way I could be “out there”.I am beginning to loath summer. The heat; the humidity especially. it knackers me and I lose my vision in my MS ‘dodgy’ eye. Hurting things hurt more. My fatigue rages and I can’t sleep due to the barometer, not the temp, coz we have air conditioning.All our friends bring jumpers (cardigans) and we have throw rugs strategically placed around the house. I can only go outside and in the garden late in the evening to tend my roses….loath it I do.The last couple of months have been around 4+ degrees (celcius – that’s a LOT) above average, so yikes re: true summer when it comes.All this makes me seriously, as I do every year, considering moving a few hours south, to the cooler weather and more rain.I love winter.
Posted by Rusty
MS is most definitely affected by the change in seasons. while summer was hard, the constant AChelped a lot. I notice a definite worseing of all my symptoms in November. Right now, I’ve noticed increased dizziness(light-headed), fatigue, balance issues and neck and head pain(base of skull). I’m hoping it will pass if I’m patient(not one of my strong points)! I’ve been taking LDN(low dose naltexone)in a low dose 3.0 for a month now. I’m not on any DMD since my neurologist took me off Tysabri. I tried Copaxone at her suggestion. I had to come off it after four shots. it made me feel so ill. she said that most patients don’t have that reaction. I’m between a rock and a hard place. Say I call the office- what can she possibly suggest? I’m drug sensitive. always have been. Now what. Monjamonja I know how you feel. maybe we have something in common. we seem to have had similar reactions to the various DMDs. Today, I had made plans to go to dinner with a former colleague. Just cancelled. I made sure to tell her how much I was looking forward to seeing her. We escheduled for next week. If I can’t get out, I invited her infor lunch. It’s very easy for people to misinterpret our numerous cancellations for not wanting to be bothered. I’m trying to be truthful. I don’t want to lose anymore from my life than I have already.
Posted by Susan R.